Sclerosi Multipla: sviluppo della tecnologia degli smartphone per monitorare la progressione della malattia
Ho trovato questa interessante notizia su https://www.facebook.com/groups/ccsvi.sicilia/380601198644423/. Vi riporto direttamente l'abstract in inglese e la notizia ripresa dal sito sopra citato.
Nel prossimo futuro sarà possibile seguire giornalmente lo stato della SM, utilizzando un apposito programma creato per smartphone android.
"E' stato creato un consorzio, che ha realizzato una suite di 21 applicazioni personalizzate per la piattaforma smartphone Android, tra cui questionari SM standardizzati e test specifici della visione a colori, destrezza e cognizione. Agli utenti saranno presentati circa 2-5 applicazioni al giorno, che richiederanno circa 5-10 minuti per essere completati. I dati raccolti saranno criptati e memorizzati in modo sicuro su un server cloud."
Abstract:
OBJECTIVE: To harness smartphone technology to improve monitoring of disease progression in Multiple Sclerosis. BACKGROUND: In Multiple Sclerosis, the accurate assessment of disease progression is critical to delivering appropriately individualized care. Smartphones offer the potential for rich, real-time data capture that may fundamentally shift traditional paradigms of clinical monitoring. DESIGN/METHODS: We established a consortium to build smartphone technology that tracks clinical changes in MS. The consortium consists of clinicians and scientists with expertise in multiple sclerosis, cognitive psychology, computer science, ethics, and regulatory issues. We plan three consecutive studies: first, to develop a suite of tests for a smartphone platform with encrypted data back-up and field-test the device; second, to expand the range of data collected through the smartphone; third, to assess the utility of this method for monitoring and predicting clinical disease progression. The consortium has created a suite of 21 custom applications for the Android smartphone platform, including standardized MS questionnaires and specific tests of color vision, dexterity, and cognition. Users will be presented approximately 2-5 applications each day, requiring about 5-10 minutes to complete. Collected data will be encrypted and securely stored on a cloud server. RESULTS: The prototype phone, with a suite of clinical tests, is complete. The first study is scheduled to commence in November 2011, and results from this study will guide further development of the smartphone system. CONCLUSIONS: The members of this consortium represent a wide range of expertise, and their input has been fundamental to this effort to test the hypothesis that high-density, longitudinal data captured via smartphone technology can enhance the ability to monitor clinical symptoms in MS. Potential benefits of this approach include more accurate predictions of disease progression, improved design of clinical trials, and better treatment decisions for patients with MS and other chronic neurological diseases. Supported by: Vertex Pharmaceuticals.
Fonte: http://www.abstracts2view.com/aan/view.php?nu=AAN12L_P01_144&terms
Nel prossimo futuro sarà possibile seguire giornalmente lo stato della SM, utilizzando un apposito programma creato per smartphone android.
"E' stato creato un consorzio, che ha realizzato una suite di 21 applicazioni personalizzate per la piattaforma smartphone Android, tra cui questionari SM standardizzati e test specifici della visione a colori, destrezza e cognizione. Agli utenti saranno presentati circa 2-5 applicazioni al giorno, che richiederanno circa 5-10 minuti per essere completati. I dati raccolti saranno criptati e memorizzati in modo sicuro su un server cloud."
Abstract:
OBJECTIVE: To harness smartphone technology to improve monitoring of disease progression in Multiple Sclerosis. BACKGROUND: In Multiple Sclerosis, the accurate assessment of disease progression is critical to delivering appropriately individualized care. Smartphones offer the potential for rich, real-time data capture that may fundamentally shift traditional paradigms of clinical monitoring. DESIGN/METHODS: We established a consortium to build smartphone technology that tracks clinical changes in MS. The consortium consists of clinicians and scientists with expertise in multiple sclerosis, cognitive psychology, computer science, ethics, and regulatory issues. We plan three consecutive studies: first, to develop a suite of tests for a smartphone platform with encrypted data back-up and field-test the device; second, to expand the range of data collected through the smartphone; third, to assess the utility of this method for monitoring and predicting clinical disease progression. The consortium has created a suite of 21 custom applications for the Android smartphone platform, including standardized MS questionnaires and specific tests of color vision, dexterity, and cognition. Users will be presented approximately 2-5 applications each day, requiring about 5-10 minutes to complete. Collected data will be encrypted and securely stored on a cloud server. RESULTS: The prototype phone, with a suite of clinical tests, is complete. The first study is scheduled to commence in November 2011, and results from this study will guide further development of the smartphone system. CONCLUSIONS: The members of this consortium represent a wide range of expertise, and their input has been fundamental to this effort to test the hypothesis that high-density, longitudinal data captured via smartphone technology can enhance the ability to monitor clinical symptoms in MS. Potential benefits of this approach include more accurate predictions of disease progression, improved design of clinical trials, and better treatment decisions for patients with MS and other chronic neurological diseases. Supported by: Vertex Pharmaceuticals.
Fonte: http://www.abstracts2view.com/aan/view.php?nu=AAN12L_P01_144&terms
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